Charleigh Pollock's mother says the family has gone through a roller-coaster of emotions since learning the B.C. government ...

The Canada Drug Agency has now done the review for Brineura and based on that review, the province determined the drug was no ...

The Ministry of Health has ruled that the funding for the medication to preserve the quality of life for Charleigh will be ...

The mother of a terminally ill nine-year-old girl said she is still processing news she received from the B.C. government on ...

Re: “ Drug coverage to be discontinued for Langford girl with fatal condition ,” June 18. I was saddened to read the news ...

Mother Jori Fales says daughter Charleigh, who has a rare fatal condition, likely won’t see her 11th birthday due to the ...

The B.C. government said Wednesday it will be pulling funding for an extremely expensive drug used by one person in the ...

Coverage of an expensive drug for a nine-year-old Langford girl with a rare fatal condition is being discontinued, B.C.’s ...

The news comes as a Batten disease expert criticizes B.C. for not consulting experts, and fundraising efforts for the family re-ignite.

Pollock is the only child in B.C. living with the rare genetic disorder Batten disease. She has been receiving bi-weekly ...

Charleigh Pollock, 9, suffers from neuronal ceroid lipofuscinosis type 2, also known as CLN2 or Batten disease, a rare and terminal genetic disorder that causes multiple seizures every day, ...